Welcome To The Alliance For Cryoglobulinemia

 You ARE RARE But NOT ALONE

Living with CryoWe welcome you whether you are a patient, caregiver, advocate or professional. We make every effort to offer comfort and peer support. Our goal is to offer information, share resources and foster community support.

We strive to build a global community with all who are willing to join us. If you have cryoglobulinemia, we hope you will feel less alone on this journey, knowing the Alliance for Cryoglobulinemia is advocating on your behalf.

You may have been frightened when you first heard the word CRYOGLOBULINEMIA! We know, we heard it for a first time too! When you are sick and newly diagnosed, there is fear because you  do not know what comes next. Living With Cryoglobulinemia is challenging but there are others living with it who can be of support. We strive to link you to others, information, resources and support. Living with this rare disease is a journey you do not have to do alone. We are on this journey with you.

 

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We don’t just live with Cryoglobulinemia, we THRIVE! Cryo patients are incredibly resourceful in finding ways to keep warm and still live full and rewarding lives. Of course we face many challenges, but by coming together via Alliance For Cryo, we can share experiences, provide peer support and pass on useful tips and ideas.

This website is a collaborative volunteer effort. We offer our experiences as patients, pass on information we found helpful and strive together to find answers for our Cryoglobulinemia community.

cryo7Explore our website and discover lots of information about Cryoglobulinemia, tips to keep warm, treatments, past webinars and information about future ones and ways to get involved. If you want to get to know more patients, you can visit our own Cryo social community on RareConnect.

Or if you want to join us on our Facebook page, you can find us here

If you want to get involved and help us help other patients living with Cryo, you can contact us.

 



Alliance for Cryoglobulinemia offers peer to peer information only. Please, contact your doctor for all medical advice and see our disclaimer.