Join one of our Support Groups and meet other patients living Cryoglobulinemia.

Welcome to the Alliance For Cryoglobulinemia

You Are RARE But NOT Alone

Whether you are a patient, caregiver, advocate or medical professional you are in the right place if you want to learn more about Cryoglobulinemia!  We offer current information about CRYO-Vasculitis, support groups, research opportunities and most importantly we strive to foster a worldwide network to spread awareness, hope, and support about this rare type of vasculitis.

Our patient advocacy team is passionate about educating and supporting you because we understand the challenges facing patients and medical professionals including a lack of information, preventive care, and treatment options. We understand the complicity of this Rare Disease and strive to ensure patients’ needs are shared within the CRYO- Vasculitis Community. Through this site, you will find valuable resources, hear from others who live with CRYO and learn more about our commitment to the CRYO-globulinemia community.

We hope to be a valuable resource on your journey, “Living With CRYO-globulinemia”.

Living with Cryoglobulinemia

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Who We Are

The Alliance For Cryoglobulinemia is an inclusive network of patients, caregivers, family, medical professionals and Cryoglobulinemia Ambassadors dedicated to improving the quality of life for people living with cryoglobulinemia. We offer an international support group via RareConnect and peer to peer support groups found on Facebook.  The Alliance for Cryoglobulinemia is entirely funded by and comprised of volunteers who generously share their talents, skills, and knowledge. Our goal is to act as an international platform, to campaign for Research, Better Treatments and a “Cure For Cryo”.

Who Are Our Partners?

Our vasculitis partner organizations are;

The Vasculitis Foundation,

 The Vasculitis Patient-Powered Research Network        

 The Vasculitis Clinical Research Consortium

 Please, contact your doctor for all medical advice and see our disclaimer.
3 Easy Ways To Contact Us.

Don’t Be Left Out In the COLD.

FACEBOOK

Send a Private message to us on FaceBook. We aim to connect patients, family, and professionals and are dedicated to improving the lives of people living with CRYO.

CALL TODAY

If we miss your call, someone will contact you in a timely manner. Because we are volunteer’s we are not staffed to respond immediately.

E-MAIL

E-MAIL us to Learn More.  In the Subject Line please indicate Cryo Information. We will try to answer your Questions and Concerns.

Join our Cryo Community, Ask Questions, Learn and Find Support.

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