Who We Are
The Alliance For Cryoglobulinemia is an inclusive network of patients, caregivers, family, medical professionals and Cryoglobulinemia Ambassadors dedicated to improving the quality of life for people living with cryoglobulinemia. We offer an international support group via RareConnect and peer to peer support groups found on Facebook. We are funded by and comprised of volunteers who generously share their talents, skills, and knowledge.
Our goal is to act as an international platform, to campaign for Research, Better Treatments and a “Cure For Cryo”.
You Are Rare But Not Alone.
Whether you are a patient, caregiver, advocate or medical professional you are in the right place if you want to learn more about Cryoglobulinemia! We offer current information about CRYO-Vasculitis, support groups, research opportunities and most importantly we strive to foster a worldwide network to spread awareness, hope, and support about this rare type of vasculitis.
Our patient advocacy team is passionate about educating and supporting you because we understand the challenges facing patients and medical professionals including a lack of information, preventive care, and treatment. You will find valuable resources here and learn more about our commitment to the Cryoglobulinemia community.
We hope to be a valuable resource on your journey, “Living With Cryoglobulinemia”.
Please, contact your doctor for all medical advice and see our disclaimer.