A WARM Welcome To The Alliance For Cryoglobulinemia

 

Welcome,  whether you are a patient, caregiver, advocate or professional you are in the right place. We offer information, resources, comfort and strive to foster community and peer support.We are building a global Cryoglobulinemia community.  If you have cryoglobulinemia, join us! Alliance for Cryoglobulinemia is advocating on your behalf!You may have been frightened when you first heard the word CRYOGLOBULINEMIA!   We know, we were scared the first time we heard it too.  It is scary to be sick and newly diagnosed because you  do not know what to expect. Come meet others who are Living With Cryoglobulinemia!  It is challenging but we know patients thriving with cryoglobulinemia who can be of support. Living with this rare disease is a journey you do not have to do alone. DSCN4746

thrivecryo

We don’t just live with Cryoglobulinemia, we THRIVE! Cryo patients are incredibly resourceful in finding ways to keep warm and still live full and rewarding lives. Of course we face many challenges, but by coming together via Alliance For Cryo, we can share experiences, provide peer support and pass on useful tips and ideas.

This website is a collaborative volunteer effort. We offer our experiences as patients, pass on information we found helpful and together try to find answers about Cryoglobulinemia.

cryo7Explore our website and discover lots of information about Cryoglobulinemia, tips to keep warm, treatments, past webinars and information about future ones and ways to get involved. If you want to get to know more patients, you can visit our own Cryo social community on RareConnect.

Or if you want to join us on our Facebook page, you can find us here

If you want to get involved and help us help other patients living with Cryo, you can contact us.

 



Alliance for Cryoglobulinemia offers peer to peer information only. Please, contact your doctor for all medical advice and see our disclaimer.