You are RARE but NOT Alone.

We are glad that you found us! Are you a patient, caregiver or someone that is looking for answers for a family member or friend? The Alliance for Cryoglobulinemia will soon be a home to host current information about cryoglobulinemia for the good of all affected by this disease. Until we have our complete site up and running, feel free to utilize the resources we have available for you now. We will let you know when the Alliance for Cryoglobulinemia website is fully developed.

We are building this community through partnership with our global peers supporting:

Research
Clinical trials
Crowdfunding
Online support groups
Peer to peer networking
Medical advisory boards

Be Rare

Mission Statement

Alliance for Cryoglobulinemia is an inclusive network of patients, caregivers, family, medical professionals and other supporters dedicated to improving quality of life for people with cryoglobulinemia.

Our goal is to create a platform that links all efforts of campaigns, research, support and other resources related to cryoglobulinemia.

We utilize medical advisors, community networking, crowd-funding, peer to peer support, social media and campaign strategies to advocate awareness, patient support, education and research.

The Alliance for Cryoglobulinemia accepts donations through the Vasculitis Foundation.

Cryoglobulinemia Research Fund at Vasculitis Foundation.
Attention: Cryo Research Fund
Vasculitis Foundation:
PO BOX 28660
Kansas City, MO 64188-8660 USA

Contribute

Please Sign Up for our Mailing List!

We will use your email address to update you on the Alliance for Cryoblobulinemia’s progress. We will not sell or disseminate your email address to any third party.

Cryoglobulinemia Support Groups

Comments, support, expertise

Please consider offering your expertise, support, or comments for the advancement of the Alliance for Cryoglobulinemia via email to mvennitti@allianceforcryo.org

Disclaimer:

The information contained on this web site is intended for educational purposes only. It is not intended, nor should it be interpreted, as medical advice or directions of any kind. Any person viewing this information is strongly advised to consult their own medical doctor(s) for all matters involving their health and medical care. This is for information purposes only.
Please note:
Our web site and free support services are for education and support. All opinions are by members or the Alliance Team and not to be considered medical advice unless specified by one of Professional Medical Staff. This site is are not for commercial use. You are welcome to contact The Alliance for Cryo to learn more about cryoglobulinemia. Please do not use any Alliance for Cryo email address or links to send solicitations or marketing messages for businesses or fundraisers. This website does not accept advertising.
Privacy Policy:
The Alliance for Cryo does not ever share, sell, or give away contact information. The Alliance for Cryo does not require any sharing of medical information. Any information collected in any form on our website’s online forms, such as e-mail addresses and/or contact information, is accessible only within The Alliance for Cryo and will never be passed on to any third party, unless required by law. Funding: Funding for this website comes from individual donations. Future funds could come from organizations, membership dues, and unrestricted educational grants from organizations. This funding will not create conflicts of interest and does not influence the content of the website.