Entries by Glen

Essential Cryoglobulinemia is Real! We need more research!

Is essential cryoglobulinemia real ? Essential cryoglobulinemia (or idiopathic cryoglobulinemia) is cryoglobulinemia with no apparent cause. Most of the time, cryoglobulinemia is caused by “something”. Usually it is caused by Hepatitis C. In the Mediterranean region, at least 90% of cases of cryoglobulinemia are associated with Hepatitis C. In the United States, the rate is […]

Cryo and Arthritis

Cryoglobulinemia can cause arthralgia (arthritis-like symptoms), less frequently cryoglobulinemia can cause arthritis which is difficult to distinguish from rheumatoid arthritis This includes the erosive form of rheumatoid arthritis. Just like rheumatoid arthritis, the arthritis caused by cryoglobulinemia requires that rheumatoid factor be present. If you have type II or type III cryoglobulinemia , you are […]

Cryoglobulinemia: The Triple Whammy

Cryoglobulinemia: The Triple-Whammy! Cryo has a way of hitting you from three different directions. Usually when we are flaring we only experience one or two of them. But in a big, bad flare it can really hit you hard with all three. 1) Hyperviscosity syndrome: Accumulating cryoglobulins can make your blood a lot thicker if […]

Quantitative vs. Qualitative Cryoglobulinemia Testing and a Second Positive Cryo Test

Qualitative vs Quantitative testing for Cryoglobulins The qualitative test for cryoglobulins is a test for the presence of cryoglobulins only. It gives no indication of the level or type of cryoglobulins found. The quantitative test for cryoglobulins returns the type and level of cryoglobulins present. A single qualitative positive test for cryoglobulins qualifies as a […]

Animals, Cryo and So Much Unknown.

Did you know that dogs, cats, and horses also develop cryoglobulinemia?  And mice can naturally have cryo.   Cryo is likely as old as warm blooded mammals, is my guess. It’s evolution is utterly unknown. The ability to make cryoglobulins might be an old evolutionary trait, or a new one. It might be that having cryoglobulins […]

Scary Worst Case Body Stuff

Picture by Dale Sears Internal organ involvement is insidious. You might not feel any pain or discomfort until the affected organ is severely damaged. Fortunately, this does not happen most of the time. The thing one has to remember is that cryo is a systemic vasculitis and can affect any organ and any system in […]

Essential Cryo: My Medication Induced Remission

I’ve been diagnosed since late 2008. I’ve spent most of that time in treatment for it with pretty good results most of the time. My rheumy and I made a try for a medication free remission which lasted about a year. That remission failed in August of 2013, and until October of 2014 I was […]

Do I Have to Take Medication? Mild to the Serious Stuff.

Do I have to take medication to treat my cryo?  The answer is  “it depends.”  It depends on your health and rwhat you and your doctor decide. The doctor will likely use the following info to help make a decision as to whether medication is necessary in your case. The type of cryo you have […]