Author Archive for: mvennitti
Entries by Marianne Vennitti
Bob talks about Blood Thickening
The medical world agrees that ‘cold’ causes Cryoglobulins to precipitate within our blood. They also agree that ‘warmth’ enables that precipitate to redissolve. They also agree that Cryo precipitation thickens ones blood and that the precipitate likes to clump together. In the world of pipes and flow, thicker fluids travel more slowly than thinner ones […]
Sheena ‘s Journey with Cryoglobulinemia & Lupus
Sometimes, just sometimes, I find writing helps. But I find it difficult writing about illness. And the thought of subsequently publishing it gives me chills, as I’ve always been a person that really dislikes publicly admitting any hardship. Over the last while, I have found some solace in talking […]
Vasculitis Patient Powered Research Network.
The Vasculitis Patient-Powered Research Network is open to ALL United States Cryoglobulinemia patients. Please Register. The Vasculitis Patient Powered Research Network (V-PPRN) is a collaborative research effort for vasculitis research involving patients as partners in research along side clinicians, researchers, physicians and interested parties. It is a joint venture of The Vasculitis Foundation and the Vasculitis Clinical Research Consortium. […]
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CAN YOU POSSIBLY HAVE A RARE DISEASE IF YOU HAVEN'T FOUND A DIAGNOSES?
alsnewstoday.com/2019/05/15/rare-diseases-constitute-public-health-issue-ncats-director-warns/
Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns
alsnewstoday.com
The healthcare system fails millions of Americans due to the "invisible" cost of treating rare diseases, a National Institutes of Health official says.
Who does the most for Vasculitis and us the patients living with Cryoglobulinemia? It's the Vasculitis Foundation. Check out this page!
Thank You, VF!
www.vasculitisfoundation.org/education/forms/cryoglobulinemia/?fbclid=IwAR1ipVmL5XFiq_KXMHsUx0x8T...
Vasculitis Foundation » Cryoglobulinemia
vasculitisfoundation.org
Cryoglobulinemia Swap out your current Facebook Profile Cover with image below! Help spread awareness about vasculitis on your social network by replacing your current Facebook Cover artwork with this...
This is an experience of a Cryo patient in regards to Cryoglobulinemia's Testing and symptoms. A great Read.
allianceforcryo.org
Qualitative vs Quantitative testing for Cryoglobulins The qualitative test for cryoglobulins is a test for the presence of cryoglobulins only. It gives no indication of the level or type of cryoglobul...