Author Archive for: mvennitti
Entries by Marianne Vennitti
Bob talks about Blood Thickening
The medical world agrees that ‘cold’ causes Cryoglobulins to precipitate within our blood. They also agree that ‘warmth’ enables that precipitate to redissolve. They also agree that Cryo precipitation thickens ones blood and that the precipitate likes to clump together. In the world of pipes and flow, thicker fluids travel more slowly than thinner ones […]
Sheena ‘s Journey with Cryoglobulinemia & Lupus
Sometimes, just sometimes, I find writing helps. But I find it difficult writing about illness. And the thought of subsequently publishing it gives me chills, as I’ve always been a person that really dislikes publicly admitting any hardship. Over the last while, I have found some solace in talking […]
Vasculitis Patient Powered Research Network.
The Vasculitis Patient-Powered Research Network is open to ALL United States Cryoglobulinemia patients. Please Register. The Vasculitis Patient Powered Research Network (V-PPRN) is a collaborative research effort for vasculitis research involving patients as partners in research along side clinicians, researchers, physicians and interested parties. It is a joint venture of The Vasculitis Foundation and the Vasculitis Clinical Research Consortium. […]
Facebook Wall
An anonymous giver is matching May donations to the Vasculitis Foundation up to $10,000! We are at the halfway mark of Vasculitis Awareness Month and for our Matching Gift Campaign goal. This is a wonderful opportunity to donate and double your impact on helping to improve the lives of patients: bit.ly/2KAJwtJ
Young Adults with Vasculitis: Looking to the Future!
The newest video for Vasculitis Awareness Month is ready for prime time. You can find it on the VAM2018 web page.
Thank you to Ben Wilson and his team for putting together this excellent video featuring comments from young adults in the vasculitis community.
It's inspiring and encouraging to see how they are dealing with a life-changing illness, while moving ahead with their life goals and plans.
Please share this video out far and wide to your family and friends.
www.youtube.com/watch?v=Jgf9axIOWFcyoutube.com
May is Vasculitis Awareness Month.
Interview with Karen, a patient with MPA
youtu.be/u2uzvLDxK5s
As we enter the third week of Vasculitis Awareness Month our focus is on listening to patients tell us about the impact of vasculitis on their lives. Karen's story details the frequent challenge of trying to get a dx from a series of doctors and specialists.
Also, Karen shares important advice to anyone who has been newly diagnosed.
This recording was done at the 2017 Vasculitis Symposium.
Introduction 0:08
First symptoms appear: 39
Searching for an answer: 1:02
Lung Function Affected: 6:14
Pain throughout legs: 7:59
“Those aren’t bug bites on legs”: 9:31
Finally seeing a rheumatologist: 11:23
Biopsies reveal the answer: 12:47
Feeling better with fitness and participating in a vasculitis study: 15:58
Advice to someone just diagnosed: 16:40This video is about Interview: Karen Anderson