These are very explicit photos of Purpura (rash) and Necrosis. Please know that NOT all patients will experience these symptoms.
Facebook Wall
The Alliance for Cryoglobulinemia is here for YOU.
Do you have Cryoglobulinemia? Do you have Questions about how to live with this Rare Disease?
Would you like to meet others living with this disease? We have a support group with friends who will share their experiences and knowledge about Cryo.
Send a friend request to Marianne Vennitti or Eileen McDermott Propp and Say I want to join the support group.The Alliance for Cryoglobulinemia is here for YOU.
Do you have Cryoglobulinemia? Do you have Questions about how to live with this Rare Disease?
Would you like to meet others living with this disease? We have a support group with over 100 members.
Visit us at allianceforcryo.org Or send a friend request to Marianne Vennitti or Eileen Propp.
This is how you Pronounce our Rare Disease.
Image: Vasculitis Foundation » Cryoglobulinemia
images.google.com
Found on Google from vasculitisfoundation.org
Carrie Ostrea, Rare Disease Advocate
NYU Langone Health and Johnson & Johnson recently hosted a their Pre-Approval Access (PAA) Patient Advocacy Webinar. As part of their content sharing, they distributed this one-pager on understanding...