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Email - email@example.com Phone - (856) 448-4085 Twitter - @mvennitti
Twitter - @allianceforcryo Facebook - Marianne Vennitti
Email - firstname.lastname@example.org Phone - (925) 315-RARE Twitter - @proppsolutions Facebook - Eileen McDermott Propp
Alliance for Cryoglobulinemia shared their photo.
1 month ago
The Alliance for Cryoglobulinemia is here for YOU.
Do you have Cryoglobulinemia? Do you have Questions about how to live with this Rare Disease?
Would you like to meet others living with this disease? We have a support group with friends who will share their experiences and knowledge about Cryo.
Send a friend request to Marianne Vennitti or Eileen McDermott Propp and Say I want to join the support group.The Alliance for Cryoglobulinemia is here for YOU.
Would you like to meet others living with this disease? We have a support group with over 100 members.
Visit us at allianceforcryo.org Or send a friend request to Marianne Vennitti or Eileen Propp. ... See MoreSee Less
Alliance for Cryoglobulinemia
2 months ago
This is how you Pronounce our Rare Disease. ... See MoreSee Less
Image: Vasculitis Foundation » Cryoglobulinemia
Found on Google from vasculitisfoundation.org
Alliance for Cryoglobulinemia shared Carrie Ostrea, Rare Disease Advocate's post.
3 months ago
Carrie Ostrea, Rare Disease Advocate
NYU Langone Health and Johnson & Johnson recently hosted a their Pre-Approval Access (PAA) Patient Advocacy Webinar. As part of their content sharing, they distributed this one-pager on understanding...