Alliance for Cryoglobulinemia Support Groups
Connect with other patients who are Living With CRYOglobulinemia.
Most of us during most of our illness felt that we were the only person struggling with cryo. We never heard of, talked to, let alone met anyone with the same disease. Then we found this website with all the information and the links to the Alliance for Cryoglobulinemia Facebook support groups! Most of us have discovered more relevant information from our support group peers than from the medical community. We can’t stress enough that you should always take your doctor’s advice first but they don’t usually give you practical tips on how to deal with the day-to-day issues. And sometimes, you don’t even want tips, you just want to vent, complain, or share a little piece of good news that only fellow cryo patients can appreciate. Please choose from the groups below according to your personal preference.
Our Secret group is not searchable on Facebook and is open exclusively to patients and/or their caregiver.
In a CLOSED group, admins must approve members, and only group members can see posted content. Posts are searchable by members in the group, but not on public threads. Peer-to-peer support thrives when people feel comfortable, safe, and with others who understand.
If you would like to join the CLOSED Group send a friend request to Marianne Vennitti and/or Eileen Propp with a message saying “Cryo Patient” and ask to join Cryoglobulinemia-Alliance for Cryoglobulinemia Facebook Closed Group or connect Here.
Our Closed group on Facebook is for anyone who is interested in learning more about Cryo.