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Rare Disease Day

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  • Alliance For Cryoglobulinemia-Ambassador RDD 2015

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About Us

Marianne Vennitti/CoFounder

Email - mvennitti@allianceforcryo.org
Phone - (856) 448-4085
Twitter - @mvennitti

Twitter -  @allianceforcryo
Facebook - Marianne Vennitti

 

Eileen M. Propp, Ph.D. CoFounder

Email - epropp@allianceforcryo.org
Phone - (925) 315-RARE
Twitter - @proppsolutions
Facebook - Eileen McDermott Propp

 

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Find Cryo on Twitter

  • "What I Want You To Know About My Life Allergic To Cold" by @vocal_creators https://t.co/vAKdx4f1Ak146 days ago
  • Rare Disease Day 2021 official video https://t.co/nPutvXwKjC via @YouTube148 days ago
  • Have info to share about #cryoglobulinemia? Let me know? We have the connections #vasculitisfoundation148 days ago
  • https://t.co/dS5ySmyMOk There is a community outside of our support groups advocating for Rare Diseases like Cryo.… https://t.co/49uB7Nj9iF148 days ago

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