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Rare Disease Day

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  • Alliance For Cryoglobulinemia-Ambassador RDD 2015

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About Us

Marianne Vennitti/CoFounder

Email - mvennitti@allianceforcryo.org
Phone - (856) 448-4085
Twitter - @mvennitti

Twitter -  @allianceforcryo
Facebook - Marianne Vennitti

 

Eileen M. Propp, Ph.D. CoFounder

Email - epropp@allianceforcryo.org
Phone - (925) 315-RARE
Twitter - @proppsolutions
Facebook - Eileen McDermott Propp

 

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Find Cryo on Twitter

  • RT @LAMFoundation: A second shout out goes to Sarah who completed the Week One Challenge by riding over 10 miles. She even went beyond the…95 days ago
  • RT @MDBRide4Rare: Congrats to our Week 1 MDBR Challenge winner, Jo Muniz, who ran 23.83 miles last week for Team Cure CMD @CureCMD! What an…95 days ago
  • @DrWMB Why July 22nd? I No for myself, my doctor has advised me to stay home. At this point I don’t know exactly… https://t.co/hXlqjYJIb8100 days ago
  • RT @bendy_thumbs: Tips to Stay Warm https://t.co/9U7MjsOEgr via @allianceforcryo141 days ago

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