cryoglobulinemia, vasculitis, blood disease, cryoglobulinemia support, cold agglutinin, cryoglobulin, purpura, cryo-precipitation, essential mixed cryoglobulinemia, hemolytic anemia, lupus, hepatitis C virus, livedo reticularis, protein, Raynaud phenomenon, systemic lupus erythematosus, thrombosis, Cryoglobulinemia testing,
Alliance for Cryoglobulinemia
  • About Us
  • Cryoglobulinemia
  • Patient Support
  • Our Stories
  • Blog
  • Contact Us
  • Donate
  • FAQ
  • Search

Rare Disease Day

You are here: Home / Rare Disease Day

Day by Day, hand to hand.

Share this:

  • Facebook
  • Twitter
  • LinkedIn
  • Print
  • Email
  • Pinterest
  • Alliance For Cryoglobulinemia-Ambassador RDD 2015

Like us on Facebook

Latest Updates

FREE  - Sign Up Today for the The Vasculitis Foundation E-News, a monthly email blast that has information on the latest updates about vasculitis including doctors, clinics, new vasculitis studies,  recruiting patients for research and much more.

Join Today

Vpprn Research

Learn More

Donate

The AFC relies heavily on donations to fund our efforts to Find A Cure For Cryo

Click Here to Donate

Helpful Links

  • Caregiver Resources
  • Cryoglobulinemia Brochure
  • Cryoglobulinemia Testing
  • Doctors who treat Cryoglobulinemia.
  • Tips to Stay Warm
  • Warm Gear Tips

About Us

Marianne Vennitti/CoFounder

Email - mvennitti@allianceforcryo.org
Phone - (856) 448-4085
Twitter - @mvennitti

Twitter -  @allianceforcryo
Facebook - Marianne Vennitti

 

Eileen M. Propp, Ph.D. CoFounder

Email - epropp@allianceforcryo.org
Phone - (925) 315-RARE
Twitter - @proppsolutions
Facebook - Eileen McDermott Propp

 

Twitter Feed

Find Cryo on Twitter

  • Many thanks to the Vasculitis Foundation for their dedication and determination to find research and to spread glob… https://t.co/ivG3aS4XdT49 days ago
  • VF Disease Spotlight: Steph's Story about living with Cryo https://t.co/Hk9VXiWOhX via @YouTube #cryoglobulinemia #vasculitisfoundation49 days ago
  • CRYO Patient Panel Webinar #cryoblobulinemia #vasculitis #vasculitisfoundation https://t.co/7wQWKznBEb via @YouTube49 days ago
  • CRYOGLOBULINEMIA https://t.co/u6ccqgCKuz100 days ago

Facebook Wall

This message is only visible to admins.

Problem displaying Facebook posts.
Click to show error

Error: Server configuration issue
Copyright © 2016 - Alliance for Cryoglobulinemia
  • Twitter
  • Facebook
  • About Us
  • Contact Us
  • Donate
  • Cryoglobulinemia Testing
Translate »
loading Cancel
Post was not sent - check your email addresses!
Email check failed, please try again
Sorry, your blog cannot share posts by email.
Scroll to top