Become a Cryo Volunteer
If Cryoglobulinemia has affected your life, then please consider becoming an Ambassador or Volunteer by offering your comments, support, story, or any interest that would benefit our Mission and Patients. In fact, the Alliance For Cryoglobulinemia is entirely supported and run by volunteers. By joining us, you’ll help promote Cryoglobulinemia awareness, education, research, and patient support.
Why Be A Cryo Volunteer?
Do you know someone who might be interested in making a meaningful difference, or are you looking to refresh your skills in a way that benefits the community? Volunteering with us comes with no time requirements, contracts, or commitments—just a shared desire to support a worthy cause.
Contact: Marianne Vennitti at mrsmvennitti@gmail.com to learn more about how you can be a part of this rewarding work for Cryo Patients.
Cryoglobulinemia Ambassadors/Volunteers/Advocates:
Glen Garder, M.S. is a scientist who has lived with cryoglobulinemia since 2008. With a background working for NASA and NOAA, his insightful posts are eagerly anticipated by group members. His writings combine hard facts, personal experiences, and practical tips for “Living with CRYO.“
Chris Holley is an artist and comedian who has lived with severe cryoglobulinemia for many years, requiring plasmapheresis for management. He shares his experiences, art, and humor with the community.
Dale Sears is a loving grandfather and humorist living with cryoglobulinemia. He was featured on an episode of Diagnose Me on Discovery Life on May 22, 2015, which aired at 7 pm Pacific/10 pm Eastern. Dale contributes satirical artwork to our support group and website.
Rebecca Land is an artist who generously shares her artwork on this website. She is always ready to support others with cryoglobulinemia or lend a hand with projects.
Kathy Whitaker is a resilient woman whose husband has cryoglobulinemia. She advocates for caregivers and families supporting loved ones affected by the condition.
Pam W. is a blogger and writer living with cryoglobulinemia. While the condition significantly impacts her life, it does not define her. You can read her blog here. Bob Newman is also a contributing blogger.
Meg Thoeming – is a former healthcare administration manager who was diagnosed with cryoglobulinemia in 2014. She is passionate about patient advocacy, striving to raise awareness of cryo within the rare disease community. Her professionalism and leadership skills enable the Alliance for Cryo to expand its efforts beyond patient support, broadening its reach and impact.
Csilla Macsari – is a writer, mother, and dog lover who has lived with cryoglobulinemia since childhood, though she wasn’t diagnosed until 2013. Despite the challenges, she has never let cryo dampen her zest for life. Her dedication and enthusiasm as an Advocate for CRYO are invaluable.
Darlene Ulmet shares her life with cryoglobulinemia in her blog. She coordinated a Rare Disease Day 2015 Campaign highlighting cryoglobulinemia. Her passion is contagious!