cryoglobulinemia, vasculitis, blood disease, cryoglobulinemia support, cold agglutinin, cryoglobulin, purpura, cryo-precipitation, essential mixed cryoglobulinemia, hemolytic anemia, lupus, hepatitis C virus, livedo reticularis, protein, Raynaud phenomenon, systemic lupus erythematosus, thrombosis, Cryoglobulinemia testing,

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Neuropathy or Arthralgia ?

February 7, 2018

Bob talks about Blood Thickening

February 7, 2018

The medical world agrees that 'cold' causes Cryoglobulins to…

Personal Experience of Losing Heat & Warming Up.

October 24, 2016

For those of you with Cryo and or something else, I only have…

Cryoglobulins and Cryoprecipitation

October 18, 2016

Rare Disease- Cryoglobulinemia

Marianne's Flare

May 9, 2016

Cryoglobulinemia SymptomsAbout 25% of people with cryo have symptoms that are identical to rheumatoid arthritis. In very few cases it also includes erosion of joints, just like severe erosive rheumatoid arthritis.

Essential Cryoglobulinemia is Real! We need more research!

May 9, 2016

Is essential cryoglobulinemia real ? Essential cryoglobulinemia…

Ending Cryoglobulinemia Confusion

April 28, 2016

I can think of no other experience that brought more confusion…

Validation: Alliance for Cryo Secret Support Group

April 19, 2016

Validation is Strength I am a shy person. When faced with…

Make like an Inuit

March 16, 2016

Living with Cryoglobulinemia. I live in the SE of the…

"Stay Warm!" But Doc It's Really Cold In Here!

March 13, 2016

Cryo and Arthritis

March 10, 2016

Cryoglobulinemia can cause arthralgia (arthritis-like symptoms),…

During an Early Cryo Flare: Potassium, myopathy, and myalgia play a role

March 9, 2016

Find Cryo on Twitter

Thriving Blind: Succeeding Without Sight by Kristin Smedley https://t.co/qkvUaJERG1 via @KristinSmedley22 days ago
All the Millions of Missing diagnoses is outrageous! #RareDiseases Constitute a ‘Public Health Issue,’ #NCATS Direc… https://t.co/OFok5COmcr101 days ago
GOT #vasculitis? Follow @VasculitisFound. They'll help you find your way. https://t.co/HJQFmDvmwX104 days ago
Please help the researcher for Vasculitis find a cure for patients like me by sending a Buck or 2 to… https://t.co/xeS2eaVBkY104 days ago

Facebook Wall

Alliance for Cryoglobulinemia

3 months ago

If you haven't read about the 2019 International Vasculitis Symposium here is the info.

Has anyone registered? I you are interested in attending please let me know and I will see if we can get it paid for you if you are not able to cover the expense

July 19-21, 2019
Hyatt-Regency
3200 E. 81st Street, Bloomington-Minneapolis

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Alliance for Cryoglobulinemia

3 months ago

CAN YOU POSSIBLY HAVE A RARE DISEASE IF YOU HAVEN'T FOUND A DIAGNOSES?

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Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

The healthcare system fails millions of Americans due to the "invisible" cost of treating rare diseases, a National Institutes of Health official says.

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Alliance for Cryoglobulinemia

5 months ago

Who does the most for Vasculitis and us the patients living with Cryoglobulinemia? It's the Vasculitis Foundation. Check out this page!

Thank You, VF!

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Vasculitis Foundation » Cryoglobulinemia

Cryoglobulinemia Swap out your current Facebook Profile Cover with image below! Help spread awareness about vasculitis on your social network by replacing your current Facebook Cover artwork with this...

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