Vasculitis Patient-Powered Research Network

They are working with us for us.

The V-PPRN seeks to transform how clinical research in vasculitis is conducted by directly engaging patients, investigators, care providers, and health systems to develop research methods to electronically collect health records and patient-reported data on a large number of patients with various forms of vasculitis. The goal of the V-PPRN research program is to conduct high-quality studies that will improve the care and the health of patients with vasculitis by exploring research questions that matter most to patients and advance medical knowledge about vasculitis.

Who Can Join the V-PPRN?    

You can join the V-PPRN if:

  • You are a patient with Cryoglobulinemia-Vasculitis
  • You are the parent of a child with vasculitis
  • You are the caregiver of an adult patient with vasculitis
  • You have regular access to the Internet
  • You are a US resident